Sickle Cell Animations in Flash

Animations for Children

One of the activities within SCOOTER was working with local nurse counsellors in Leicester to start thinking about resources for children. The team I spoke with felt that making something in the form of an animation, that could help explain sickle cell to children, would be hugely beneficial.

Even better, we thought, wouldn’t it be great to get the children to produce some pictures and materials themselves. However, that is where we ground to a halt and the project would have required NHS ethics and taken effort and time that although all very exciting and important, were well outside of our timing and funding capabilities.

I would still be interested in exploring this again – although I’m now living in Bristol. Here are some basic animated resources that we did start to develop, based on some of their paper-based resources.

SCOOTER100_Sickle_Cell_Animation

SCOOTER101_Sickle_Cell_Info_For_Children

 

 

 

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SCOOTEROER79e_Patent_Law

Introduction to Patent Law

Author: Caroline Coles

Level: Undergraduate and postgraduate law, medicine.

OER Features:

SCOOTEROER79b_Patent_Law (PowerPoint Slides)

SCOOTEROER79c_Patent_Law (PDF file)

 

OER Description:

We were very grateful for contributions to the project from Caroline Coles a principal lecturer in the Faculty of Business and Law at De Montfort. Caroline is a specialist of business law and commercial law, and also ‘champions’ technology enhanced learning within the Law School and across the university.

These series of OER introduce students to patent law with relevance to any undergraduate subject. I’ ve used Caroline’s materials for example when teaching about the pharmaceutical industry and commercialisation of scientific ideas. They will form a good introduction to intellectual property and patenting for anyone.

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Sickle Guide for Schools – Portuguese Translation

Sickle Cell in Schools: Work in Minas Gerais, Brazil

DOWNLOAD –> Portuguese Language Version_FINAL_Nov 2014-2 (PDF)
REMIX / EDIT –> Portuguese Language Version_FINAL_Nov 2014 (Word doc)

In the UK researchers at De Montfort University have examined the lack of care for young people with sickle cell disorder (SCD) at school (Dyson et al, 2010a, 2010b, 2011). This has resulted in the publication of a Guide to School Policy on Sickle Cell. The guide is aimed not primarily at classroom teachers (though they would be very welcome to make use of it) but at those with a broader responsibility. It is written with the following kinds of people in mind: the lead teacher for young people with a medical condition; heads of school year or those responsible for pastoral care in school; school nurses; heads of school nursing; local authority school advisors; school governors, or ministry of education officials. In short it is aimed at those who can influence how schools respond to young people with sickle cell disorder (SCD).

This guide has previously been adopted by several UK sickle cell NGOs. It has now been adapted by colleagues working in the state of Minas Gerais in Brazil. Working with colleagues from CEHMOB MG (a multi-disciplinary organization working on sickle cell) and NUPAD  part of the medical school at the Federal University of Minas Gerais (UFMG) in Belo Horizonte, Kelen Sant’Anna de Lima, a post-doctoral researcher in socio-linguistics at UFMG, has co-ordinated a team of experts in sickle cell, cultural adaptation and translation to produce a Portuguese language version of the guide.  As more and more young people living with sickle cell disease in Brazil grow up to become adults, it is hoped that this guide will help them to achieve the best they can at school in order to best prepare them for adult life.

The Guide was launched at the Second World Congress on Sickle Cell, which took place 11-th-14th November 2014 in Rio de Janeiro. At a special workshop delegates heard from Isabel Castro (CEHMOB MG); Kelen Santa’Anna de Lima (NUPAD); Maria Zeno Soares (FENAFAL, the Federation of Brazilian NGOs for sickle cell) Simon Dyson (De Montfort University) and from the special guest of honour Ilma Fátima de Jesus from the Brazilian Ministry of Education.

Illustrations

The Guide to School Policy that has been adapted and translated into Portuguese by the team at the CEHMOB MG and the Federal University of Minas Gerais.

CC-BY-SA Kelen Santa’Anna de Lima et al

CC-BY-SA Kelen Santa’Anna de Lima et al

The State of Minas Gerais in Brazil.

CC-BY-2.5 Raphael Lorentzo de Abeu 

CC-BY-2.5 Raphael Lorentzo de Abeu

 

References

Dyson, SM; Atkin, K; Culley, LA; Dyson, SE; and Evans, H (2011) Sickle cell, habitual dyspositions and fragile dispositions: young people with sickle cell at school Sociology of Health and Illness 33 (3): 465-483 [ISSN: 0141-9889] http://onlinelibrary.wiley.com/doi/10.1111/j.1467-9566.2010.01301.x/full

Dyson, SM; Atkin, K; Culley, LA; Dyson, SE; Evans, H and Rowley, DT (2010a) Disclosure and sickle cell disorder: a mixed methods study of the young person with sickle cell at school Social Science and Medicine 70 (12) 2036-2044. [ISSN: 0277-9536] http://dx.doi.org/10.1016/j.socscimed.2010.03.010

Dyson, SM; Abuateya, H; Atkin, K; Culley, LA; Dyson, SE; and Rowley, DT (2010b) Reported school experiences of young people living with sickle cell disorder in England British Educational Research Journal 36 (1): 125-142 [ISSN 0141-1926] http://dx.doi.org/10.1080/01411920902878941

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