Educational experiences of young people with sickle cell disease 1


Image: Professor Simon Dyson Lecture 1 on Educational Experiences of Young People
Creative Commons BY SA.

Author:       Professor Simon Dyson

Level:          Undergrad. social sciences & healthcare; postgrad. education & healthcare professionals.

OER Lecture Series:

Lecture 1
Lecture 2
Lecture 3
Lecture 4
Lecture 5
Lecture 6


OER Features:

SCOOTEROER30d_SCED1_LiteratureReview (PDF of presentation slides)

Click here to view as a narrated Powerpoint presentation
(will open the resource in a new browser window)

OER Description:

The school experiences of young people with sickle cell and thalassaemia are not well understood in the UK and ill-researched. In an ESRC-funded programme of research, Professor Simon Dyson at De Montfort University looked into a number of themes:

  • How is the medical care of children managed in schools?
  • How does sickle effect attendance and the overall school experience and achievement?
  • How does education policy meet the needs of children?

Professor Dyson’s research has been applied to inform policy and generate an educational guide for schools which can be found on this website. The guide has been translated into four Nigerian dialects subsequently. Important aspects uncovered in the research include the need to provide children with a risk-free environment which takes into account the prevention of infections, avoidance of the cold, good access to drinks and regular toilet breaks and avoiding exercise.

The outputs of his research can be found in a number of lectures and publications. Six lectures can be found on this site available as narrated presentations, slide copies and as podcasts.

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