Ethnicity and screening for sickle cell and thalassaemia


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Author:       Professor Simon Dyson

Level:          Undergrad. social sciences & healthcare; postgrad. education & healthcare professionals.

OER Features:

Lecture 1 Introduction to research into ethnicity and screening

Lecture 2 Views of midwives and patients

Lecture 3 Lessons for low prevalence areas

Lecture 4 Views of white carriers of haemoglobinopathies

OER Description:

Professor Simon Dyson at De Montfort University and teams of academic and healthcare specialists in the UK (people involved can be seen in the presentations) have investigated the effectiveness of screening processes for sickle cell anaemia and thalassaemia, in particular, in relation to ethnicity. The work has looked at the time taken during the screening processes to fully explain the questions, and whether the processes fully identifies carriers of haemoglobin disorders who are currently missing out on counselling and support.

In the research, the team have interviewed patients and families, health professionals – primarily midwives, and made recommendations on how to manage the complex process to improve screening and outcomes. The research discusses not only the needs for patients, mothers, fathers and families, but educational needs of the professionals in ensuring that the screening questions around ethnicity are fully included and explored.

These OER are available in a range of formats – the narrated presentations are excellent educational resources, and also available as Powerpoint slides, PDF files and podcasts.

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