Tag Archives: medical consent

Patient consent and considerations for health and medical OER

open educational resources – training

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Authors:                                Level:

Dr Vivien Rolfe                             OER community

OER Features:

Guide to creating health and medical OER.

OER Description:

As part of the UKOER Programme (2009-2012) there was a wealth of important information produced, and in the context of creating health OER, the Medev Subject Centre team worked on some outstanding projects. I hope over the next few weeks that many of the OERs produced by this team can be hosted on this blog, as the original URLs to the subject centre pages are no longer valid. However, here are some resources to get you started in considering some of the additional checks that need to be made when creating OER involving health and medical information, and that might require cooperation from patients and families.

The team comprised Suzanne Hardy, Megan Quentin-Baxter and Gillian Brown who worked for the subject centre and were based at the University of Newcastle. You can hear them talking about the key projects on YouTube.

OER Projects

OOER Organising OERs – (Pilot Phase)
PORSHA Pathways to Open Resource Sharing (Phase 2)
PUBLISH OER (Phase 3)

During these projects when the team were working in the creation of health OERs, they observed challenges in working across NHS and academic settings, not simply in terms of dual-location of students, staff often with more than one job role, but the simple sharing of resources across separate IT networks was a problem. The team also started thinking about the issue of consent. The involvement of patients in clinical education was well established, as it is today, but the notion of recording and releasing patient materials openly gave rise to new questions. Any resource would have the issues of IPR and copyright to consider, but additional checks would have to ensure compliance with Schedule 2 of the Data Protection Act where consent is given by the ‘data subject’ to the processing of that data.

There are other scenarios that require consideration relating to ethical questions. Patients are protected by the Data Protection Act, but what when they are no longer patients? What if they die? What about cadaveric materials?

Here is some further reading on the subject.

HEA Medev S Hardy_Medical OER_2009 (PPT slides from a talk by Suzanne Hardy)

OER IPR Support Kit and Web2Rights LTD (Support kits for IPR – diagrams, charts and videos)

GMC guidance on audio and visual of patients (General Medical Council guidance)

Medev ‘Risk Kit’ – risks and consent. (Hopefully to be located here soon).

 

The reuse of OER in health and life sciences: a check-up

Using health OER (Download PDF guide on “the reuse of OER in health and life sciences”)

By Vivien Rolfe, Jacqui Williams and Richard Windle. This guide talks through some of the author experiences of creating and using health OER. In the UK alone, health is one of the largest subject sectors, with one fifth of students studying Medicine, Biological and Veterinary Sciences. A further one in ten study Nursing, Midwifery, Pharmacy and biomedical sciences. THE SCOPE FOR SHARING TEACHING MATERIALS IS VAST BUT YET TO BE REALISED.

The recommendations from this work were to:

  1. develop partnerships and communities around repositories of resources for health OER to be more widely adopted.
  2. to take the OER where the ‘real world’ users are likely to be interested in them. There is a barrier to the academic and technical language of universities. “We must work with approaches and routes of access that these communities are conversant with and that promote confidence”.

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